Take Action Tuesday posts feature ways you can help improve the lives of people with disabilities — in your community and around the world.
From signing your name to a petition to emailing your local representative to share your stance on proposed legislature, many of these acts don’t take long but can make a real difference.
Discover what you can do on the national and state levels to improve the lives of people with disabilities.
Make a Difference Across the United States
Share Your Story: Have You Gone Back to Work After Being on Disability?
If you were on Social Security Disability Insurance and returned to work, NPR wants to hear from you. Take their quick online survey and tell them your story about what prompted your decision, the challenges, and the pros and cons.
Mark Your Calendar: 26th Annual Mid-Atlantic ADA Update Conference on Nov. 14–15, 2019 in Philadelphia
Attend the 26th Annual Mid-Atlantic ADA Update Conference on Nov. 14–15, 2019 to get up-to-date information on ADA guidelines and regulations. You’ll also learn the best practices for implementing the law and network with other professionals.
Register Today: The New York City Buddy Walk® in Central Park on Sept. 14, 2019
Join people with Down syndrome, their family and friends, politicians and more to promote acceptance and inclusion for people with Down syndrome. All the funds raised will go towards the National Down Syndrome Society’s programming.
Call your Members of Congress: Thank Them for Passing the Money Follows the Person Extension and Ask Them to Co-sponsor and Support the EMPOWER Care Act
Thanks to the hard work of advocates like you, Congress passed the Money Follows the Person Extension (H.R. 1839). Call your members of Congress to thank them and ask them to co-sponsor and support the EMPOWER Care Act. The EMPOWER Care Act is a longer-term reauthorization of the Money Follows the Person.
When you contact your members of Congress, you can use the following script:
Hello, this is [Name]. I’m a resident of [Town, State].
I am calling to thank you for adding funding for the Money Follow the Person (MFP) program in H.R. 1839 and to ask you to support a longer-term reauthorization in the EMPOWER Care Act.
MFP has enabled over 88,000 older adults and people with disabilities living in institutions to transition back to their communities. MFP is fiscally responsible: it has improved the quality of life for thousands of individuals while saving states money.
I am asking [Member of Congress’ Name] to co-sponsor and vote yes on the EMPOWER Care Act.
Thank you for taking my call!
[IF LEAVING A VOICEMAIL: please leave your full street address and zip code to ensure your call is tallied]
Mark Your Calendar: The Messages We Send: Stigma Toward Persons Living With Dementia and How to End It Webinar on May 7, 2–3 p.m.
There is a stigma around dementia, including Alzheimer’s disease. From negative stereotypes to prejudicial attitudes and discriminatory behaviors, the stigma can harm a person with dementia and their loved ones. Often people with dementia and their loved ones avoid getting the help they need to manage the disease due to the stigma surrounding it.
In this webinar, you can learn more about the stigma, the role language plays in it and the everyday strategies you can use to counter it. You’ll hear from a woman who has an early stage of dementia to get a firsthand account of living with the disease.
Register Today: National Older Adult Mental Health Awareness Day 2019 on Monday, May 20, 2019 in Washington, D.C.
Register today for the National Older Adult Mental Health Awareness Day 2019 On Monday, May 20, 1–3:30 p.m. in the Great Hall of the Hubert H. Humphrey Building in Washington, D.C. The event will raise awareness of older adults’ mental health needs, promote evidence-based supports, highlight where to seek services and more.
Join the Movement: #WeAreStillWaiting to #StopTheShock on Wednesday, Apr. 24, 2019
The Autistic Self-Advocacy Network (ASAN) needs your help to spread the word that #WeAreStillWaiting to #StopTheShock. Apr. 24, 2019 marks five years since the Food and Drug Administration (FDA) banned the use of the Gradual Electronic Decelerator (GED).
The device delivers an electric shock to a person. The Judge Rotenberg Center, a Massachusetts institution for kids and adults with intellectual and developmental disabilities, still uses it. We need your help to spread the word that the FDA has yet to enforce the ban.
From taking a selfie and posting it on social media to contacting the FDA, you can join the movement. Learn more about the ways you can get involved in #WeAreStillWaiting to #StopTheShock.
Register Today: GettingHired’s Online Career Expo for Job Seekers With Disabilities on May 2, 2019
GettingHired is holding an online career expo for job seekers with disabilities. This event connects job seekers of all experience levels with nationwide employers in all industries. You’ll be able to chat online directly with employers of your choice.
Mark Your Calendar: National Council on Disability Meeting on July 15–16, 2019 in Chicago, IL
The National Council on Disability is holding a council meeting on July 15–16 in Chicago, Illinois. During the meeting, which is open to the public, the Council will discuss agency priorities, policy trends and other agency business.
Mark Your Calendar: 2019 Annual Conference on Independent Living on July 22–25, 2019 in Washington, D.C.
The National Council on Independent Living’s annual conference is July 22–25 at the Grand Hyatt in Washington, D.C. The conference will include legislative and advocacy updates, workshops and exhibits.
Contact Your Representatives: Ask They Join Representatives Rice and Walden in Support of the Homeless Veterans’ Reintegration Program
The Homeless Veterans’ Reintegration Program (HVRP) helps homeless and at-risk veterans find employment and housing through skills training. Representatives Kathleen Rice of New York and Greg Walden of Oregon are working to get funding support in the U.S. House of Representatives for the 2020 fiscal year.
Mark Your Calendar: 2019 NDSS CARING With Congress on July 10, 2019 in Washington, D.C.
The National Down Syndrome Society (NDSS) is hosting its 15th annual CARING with Congress event on July 10, 5:30–7:30 p.m. During the event, supporters, Senators and members of Congress come together to raise money for the NDSS Research Innovation & Discovery Fund.
Participate in a Survey: Workplace Tech for People With Intellectual and Developmental Disabilities
Do you work and have an intellectual or developmental disability? Does your loved one? Are you a job coach or other rehabilitation service provider for people with disabilities? Do you employ people with disabilities? If you answered yes to any of these, Georgia State University’s Center for Leadership in Disability (CLD) needs your help.
Participate in a quick online survey to inform the CLD about whether workplace technology helps people with I/DD succeed at work, how wireless technology can be used in the workplace and the barriers to using these technology resources in the workplace.
Participate in a Survey: Oral and General Health of Kids and Young Adults With Down Syndrome
Do you have a child (newborn to 21 years) with Down syndrome? Help researchers at New York University better understand the oral and general health of young people with Down syndrome. The anonymous online survey only takes 5 to 10 minutes to complete. Learn more and take the survey!
Register Today: Milestones National Autism Conference on June 11–12 in Cleveland
The National Autism Conference on June 11–12 at the Cleveland I-X Center will detail practical strategies for all. Keynote speakers, workshops, exhibitors and more provide invaluable resources and information for people with autism, their families and support professionals. Learn more about the conference and register today!
Contact Your Members of Congress: Urge Them to Co-Sponsor the Disability Integration Act (DIA)
The DIA, a bipartisan bill, ensures people with disabilities have the right to live in and receive services in their own homes. It prevents people from being forced to live in institutions. In short, this act is designed to ensure the full integration of people with disabilities into communities.
We need your help to get this bill before a full vote in the House of Representatives. Contact your members of Congress today and ask they co-sponsor this bill (H.R. 555 and S. 117).
Contact Your Legislators: Ask Them to Support the Surviving Widow(er) Income Fair Treatment (SWIFT) Act of 2019
The SWIFT Act would expand the social security benefits for widow(er)s and surviving divorced spouses. It would also fix outdated and arbitrary claiming restrictions, allowing for more flexibility when claiming benefits. Contact your legislators and ask they support this bill.
Participate in a Paid Research Study: Universal Design Practices to Enhance Work Outcomes
The Center for Assistive Technology and Environmental Access is looking for employed people with disabilities for their research study about work environments. Specifically, they want to know how the way you get around the office or take part in meetings affects your sense of team inclusion. Based on their findings, they’ll compile actions employers can take to make workplaces more inclusive.
Give Your Input: What Issues Should the Administration for Community Living (ACL) Prioritize Relating to Elder Abuse, Neglect and Exploitation
The ACL is working on determining the focus of the Elder Justice Coordinating Council — and they need your input! What issues do you think relating to elder abuse, neglect and exploitation should the council prioritize? Your input will help them make an informed decision on their activities over the next two years. Learn more about the input they are requesting.
Submitting your thoughts and ideas is easy. Just send an email to firstname.lastname@example.org with the subject line “Thoughts and Ideas.” Input is due by Sept. 30, 2019.
Sign the Petition: Help Stop Any Funding Cuts or Caps to Medicaid
Join Easterseals as they work to prevent any funding cuts or caps to Medicaid. Submit the Easterseals form to add your name to the petition.
By submitting the form, you’re telling Congress that health services are crucial to people with disabilities and their loved ones. You’re joining the fight to stop Medicaid cuts and caps that prevent people with disabilities from getting the Home and Community Based Services they need to live their best, independent lives.
Participate in the Survey: For Seniors With Disabilities
If you’re a senior with a disability, The Americans with Disabilities Act (ADA) National Network wants to hear from you.
The ADA National Network is trying to learn how people like you get your information about services you can receive and your rights under the Americans with Disabilities Act — and how you use that information.
Take the survey and help the ADA National Network improve their future outreach initiatives to better support seniors with understanding their rights and available services.
Sign the Petition: Urge the Senate to Support the Convention on the Rights of Persons with Disabilities
The Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty based on The Americans with Disabilities Act (ADA). It promotes the rights and protections of people with disabilities around the world.
There are 173 ratifications around the globe for this convention. Unfortunately, the United States has failed to ratify it by five votes. Since the failed voting, it has not come to a floor vote.
Submit the form to sign your name to the petition. The petition will be delivered in person to the offices of Senators in Washington, D.C.
Share Your Story: Help Prevent Medicaid Cuts by Submitting Your Story Online About Why Receiving Home and Community Based Services Is Important
The Arc is gathering stories from people like you about why Home and Community Based Services are important. They’re using these stories to advocate for continued funding of the Medicaid program.
Fill out the form and submit your story online to join the effort to protect Medicaid and Home and Community Based Services.
Make a Difference in Your State
Share Your Story: Help Family Voices Colorado Inform the Public on What It’s Like to Navigate the Health Care System for a Child With Special Needs
Do you have a child with special needs? Family Voices Colorado would like to hear your story about what it’s like for your family to navigate the often complex health care system.
You can call, email or share your story on their Facebook page. Learn more about how you can help Family Voices Colorado spread the word on what it’s like caring for a child with special needs.
Mark Your Calendar: The Arc of Illinois 69th Annual Convention on Apr. 24–25, 2019
Join the ARC of Illinois for their annual convention on Apr. 24–25. Presentation topics include addressing the concerns of siblings, creating effective and efficient support plans and the Illinois Medicaid Redetermination process.
Submit a Form: Help Create a Sustainable Intellectual and Developmental Disabilities (ID/DD) Support System for Illinois by Using the Form to Email Your Legislators
Reach out to your Illinois legislators asking them to increase the funding for a sustainable ID/DD support system. This funding would improve the quality of services provided as well as decrease the number of people on the waiting list to receive the services.
Use this form to send a pre-written message to Illinois legislators that tell them you support increased funding for a sustainable ID/DD support system.
Contact Your Legislators: Ask Legislators to Fund Home and Community Based Services
Oklahoma needs to continue funding the Home and Community Based Services people are receiving. Moreover, funding should cover those on a waiting list. In 2018, the number waiting to receive community-based services has grown to over 7,600.
Find your legislators’ contact info and reach out urging them to fund these critical services.
Sign the Petition: Add Your Name to Show Your Support of Funding for Pennsylvanians With Autism and Intellectual Disabilities
There is a shortage of direct support professionals. This shortage is leading to a long waiting list for people with autism or intellectual disabilities who want services that will help them live and work in their communities.
Use the form with its prepopulated message to reach out to the Governor and PA General Assembly. You’ll be urging them to make autism and intellectual disability a top priority in the budget.
Email Your Legislators: Ask Them to Prevent Discrimination Against People With Disabilities in Organ Transplants
Contact your legislator to tell them you support SB 5405. This bill ensures people with Down syndrome and other disabilities on transplant lists receive equal consideration. Sending your support is easy with the pre-filled email form!