Take Action Tuesday posts feature ways you can help improve the lives of people with disabilities — in your community and around the world.
From signing your name to a petition to emailing your local representative to share your stance on proposed legislature, many of these acts don’t take long but can make a real difference.
Discover what you can do on the national and state levels to improve the lives of people with disabilities.
Make a Difference Across the United States
Register Today: 2018 NDSS Down Syndrome Adult Summit in Detroit, Michigan on April 4–6, 2019
The National Down Syndrome Society (NDSS) is hosting its 2019 Down Syndrome Adult Summit on April 4–6, 2019 in Detroit, Michigan. Join others with Down syndrome, caregivers, family members and professionals for this informative conference. You’ll explore topics such as economic self-sufficiency, aging-related changes and health challenges, community integration and more. Learn more about the Down Syndrome Adult Summit and register today!
Participate in a Survey: Oral and General Health of Kids and Young Adults With Down Syndrome
Do you have a child (newborn to 21 years) with Down syndrome? Help researchers at New York University better understand the oral and general health of young people with Down syndrome. The anonymous online survey only takes 5 to 10 minutes to complete. Learn more and take the survey!
Register Today: Milestones National Autism Conference on June 11–12 in Cleveland
The National Autism Conference on June 11–12 at the Cleveland I-X Center will detail practical strategies for all. Keynote speakers, workshops, exhibitors and more provide invaluable resources and information for people with autism, their families and support professionals. Learn more about the conference and register today!
Contact Your Members of Congress: Urge Them to Co-Sponsor the Disability Integration Act (DIA)
The DIA, a bipartisan bill, ensures people with disabilities have the right to live in and receive services in their own homes. It prevents people from being forced to live in institutions. In short, this act is designed to ensure the full integration of people with disabilities into communities.
We need your help to get this bill before a full vote in the House of Representatives. Contact your members of Congress today and ask they co-sponsor this bill (H.R. 555 and S. 117).
Register Today: 2019 Disability Policy Seminar on April 8–10 in Washington D.C.
Attend the 2019 Disability Policy Seminar to enhance your advocacy skills while connecting with your fellow advocates and representatives on issues that matter to you. This three-day conference will be held at the Renaissance Washington in downtown D.C.
You’ll have the opportunity to discuss key issues with others from your state and attend informative sessions led by experts. Presentations include updates on employment policy, education policy, Medicaid, social security programs, federal funding and more. Register today!
Contact Your Legislators: Ask Them to Support the Surviving Widow(er) Income Fair Treatment (SWIFT) Act of 2019
The SWIFT Act would expand the social security benefits for widow(er)s and surviving divorced spouses. It would also fix outdated and arbitrary claiming restrictions, allowing for more flexibility when claiming benefits. Contact your legislators and ask they support this bill.
Participate in a Paid Research Study: Universal Design Practices to Enhance Work Outcomes
The Center for Assistive Technology and Environmental Access is looking for employed people with disabilities for their research study about work environments. Specifically, they want to know how the way you get around the office or take part in meetings affects your sense of team inclusion. Based on their findings, they’ll compile actions employers can take to make workplaces more inclusive.
Give Your Input: What Issues Should the Administration for Community Living (ACL) Prioritize Relating to Elder Abuse, Neglect and Exploitation
The ACL is working on determining the focus of the Elder Justice Coordinating Council — and they need your input! What issues do you think relating to elder abuse, neglect and exploitation should the council prioritize? Your input will help them make an informed decision on their activities over the next two years. Learn more about the input they are requesting.
Submitting your thoughts and ideas is easy. Just send an email to firstname.lastname@example.org with the subject line “Thoughts and Ideas.” Input is due by Sept. 30, 2019.
Sign the Petition: Help Stop Any Funding Cuts or Caps to Medicaid
Join Easterseals as they work to prevent any funding cuts or caps to Medicaid. Submit the Easterseals form to add your name to the petition.
By submitting the form, you’re telling Congress that health services are crucial to people with disabilities and their loved ones. You’re joining the fight to stop Medicaid cuts and caps that prevent people with disabilities from getting the Home and Community Based Services they need to live their best, independent lives.
Participate in the Survey: For Seniors With Disabilities
If you’re a senior with a disability, The Americans with Disabilities Act (ADA) National Network wants to hear from you.
The ADA National Network is trying to learn how people like you get your information about services you can receive and your rights under the Americans with Disabilities Act — and how you use that information.
Take the survey and help the ADA National Network improve their future outreach initiatives to better support seniors with understanding their rights and available services.
Contact Your Members of Congress: Urge Them to Extend the Money Follows Person Program
The short-term funding extension for the Money Follows Person program — called the Medicaid Extenders Act 2019 — became law on Jan. 25, 2019. The bill included three months of funding. States have until September of 2019 to use this funding. It also extended the spousal impoverishment protections.
This protection allows one spouse to keep a share of their joint income and assets while the other spouse is in nursing care or receives Home and Community Based Services. Without this protection, the spouse not receiving services could face financial hardship. That’s because their joint income and assets would be used first to fund the care their spouse is receiving. Then, they’re left with not enough to cover their own living expenses.
Now, thanks to this new law, the protection is in place — but only until March 31, 2019. Contact your members of Congress today to urge them to extend the Money Follows the Person Program. Learn more about the Money Follows the Person Program.
Sign the Petition: Urge the Senate to Support the Convention on the Rights of Persons with Disabilities
The Convention on the Rights of Persons with Disabilities (CRPD) is an international treaty based on The Americans with Disabilities Act (ADA). It promotes the rights and protections of people with disabilities around the world.
There are 173 ratifications around the globe for this convention. Unfortunately, the United States has failed to ratify it by five votes. Since the failed voting, it has not come to a floor vote.
Submit the form to sign your name to the petition. The petition will be delivered in person to the offices of Senators in Washington, D.C.
Share Your Story: Help Prevent Medicaid Cuts by Submitting Your Story Online About Why Receiving Home and Community Based Services Is Important
The Arc is gathering stories from people like you about why Home and Community Based Services are important. They’re using these stories to advocate for continued funding of the Medicaid program.
Fill out the form and submit your story online to join the effort to protect Medicaid and Home and Community Based Services.
Make a Difference in Your State
Share Your Story: Help Family Voices Colorado Inform the Public on What It’s Like to Navigate the Health Care System for a Child With Special Needs
Do you have a child with special needs? Family Voices Colorado would like to hear your story about what it’s like for your family to navigate the often complex health care system.
You can call, email or share your story on their Facebook page. Learn more about how you can help Family Voices Colorado spread the word on what it’s like caring for a child with special needs.
Mark Your Calendar: A Free Talk on March 27 by the Host of Loud and Proud on YouTube
Nicole Kelly will speak at Illinois State University about inclusion and inspiration. The former Miss Iowa, Kelly will present her talk “Student Access and Accommodation Services” at 7 p.m. in the Bone Student Center. Learn more about this free talk on inclusion and inspiration!
Submit a Form: Help Create a Sustainable Intellectual and Developmental Disabilities (ID/DD) Support System for Illinois by Using the Form to Email Your Legislators
Reach out to your Illinois legislators asking them to increase the funding for a sustainable ID/DD support system. This funding would improve the quality of services provided as well as decrease the number of people on the waiting list to receive the services.
Contact Your Legislators: Ask Legislators to Fund Home and Community Based Services
Oklahoma needs to continue funding the Home and Community Based Services people are receiving. Moreover, funding should cover those on a waiting list. In 2018, the number waiting to receive community-based services has grown to over 7,600.
Find your legislators’ contact info and reach out urging them to fund these critical services.
Sign the Petition: Add Your Name to Show Your Support of Funding for Pennsylvanians With Autism and Intellectual Disabilities
There is a shortage of direct support professionals. This shortage is leading to a long waiting list for people with autism or intellectual disabilities who want services that will help them live and work in their communities.
Use the form with its prepopulated message to reach out to the Governor and PA General Assembly. You’ll be urging them to make autism and intellectual disability a top priority in the budget.
Mark Your Calendar: Join The Arc of Washington State for Their Advocacy Day on Wednesday, Apr. 3 at the Capitol
Meet The Arc at 10 a.m. at the United Churches (across from the Capitol) for an hour and a half briefing on current issues. You’ll end with an afternoon of advocating.
The theme for Apr. 3 Advocacy Day is “Incredible Autistics!” It focuses on how people with autism have contributed to the community. This advocacy day is about awareness, acceptance and appreciation. Learn more about Advocacy Days.
Email Your Legislators: Ask Them to Prevent Discrimination Against People With Disabilities in Organ Transplants
Contact your legislator to tell them you support SB 5405. This bill ensures people with Down syndrome and other disabilities on transplant lists receive equal consideration. Sending your support is easy with the pre-filled email form!